Help DeskFamily and Personal RelationshipsParenting after SCIResource Centers and Online Support

2.6. Resource Centers and Online Support

Andre Sobel River of Life Foundation
The Andre Sobel River of Life Foundation enables single parents of children with life-threatening illnesses to care for their children full time by relieving financial burdens when other resources are exhausted or unavailable.

Beach Center on Families and Disabilities
The Beach Center concentrates on families and disability. Their research projects are designed to build a more responsive community and strengthen the motivation, resource, and skills of families. They work in the areas of parent to parent mutual support, fathers, friendships, empowerment, transition planning, family-centered service delivery, family support policy, and abuse and neglect of children with disabilities. Products resulting from our research are knowledge-based and family-friendly.
The Disabled Parenting Project (DPP) is an online space for sharing experiences, advice, and conversations among disabled parents as well as those considering parenthood. The DPP also serves as an information clearinghouse and interactive space for discussion and connection.
Connects families who suddenly have to deal with a spinal cord injury with people like them who have already "been there" and "done that." It's a first-of-its-kind Internet-based effort to collect life experiences surrounding spinal cord injuries and bring them to the world.

Family Adjustment to Spinal Cord Injury (pdf)
This booklet addresses some of the concerns and experiences which the family of a person with SCI may experience. It focuses on some of the initial questions and concerns loved ones may have about the injury and feelings that families experience.

National Family Caregivers Association (NFCA)
NFCA is a nonprofit membership organization whose mission is to improve the overall quality of life of America's 18 million family caregivers, regardless of their relationship to the person needing care, or the specific illness or disability being dealt with. NFCA was started to improve the quality of life for all caregivers by providing information, educational materials, and advocacy for their cause.

National Resource Center for Parents with Disabilities
This center operates under the auspices of Through the Looking Glass, an agency that offers services to families in which one or more members has a disability or medical issue. Their focus is on areas of custody, pregnancy & birthing, adoption and adaptive parenting equipment. Publishes newsletter, Parenting with a Disability

PACER Center
PACER (Parent Advocacy Coalition for Educational Rights) is founded on the concept of Parents Helping Parents. PACER serves families of children and adults with disabilities and is staffed primarily by parents of youth with disabilities, and by persons with disabilities. PACER's programs help parents become informed and effective representatives for their children in early childhood, school-age and vocational settings. This site provides information about laws, resources and parents' rights and responsibilities and local groups nationwide.

Parents with Disabilities Online
This web site offers support and resources to parents with disabilities, a person with a disability who is planning to become a parent, or a nondisabled partner of a disabled parent.

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