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2.2. Professional Info Sheet
This information sheet provides resources on research and information centers, agencies, and organizations that provide materials for professionals who work with individuals with SCI.
Academy of Spinal Cord Injury Professionals (ASCIP)
ASCIP is a not for profit incorporated association comprised of 4 professional sections: American Paraplegia Society (APS), Association of Spinal Cord Injury Nurses (ASCIN), Psychologists and Social Workers (PSW) and Therapy Leadership Council (TLC).
Phone: 718-803-3782
Publication: Journal of Spinal Cord Injury Medicine
ASCIP is a not for profit incorporated association comprised of 4 professional sections: American Paraplegia Society (APS), Association of Spinal Cord Injury Nurses (ASCIN), Psychologists and Social Workers (PSW) and Therapy Leadership Council (TLC).
Phone: 718-803-3782
Publication: Journal of Spinal Cord Injury Medicine
American Academy of Physical Medicine & Rehabilitation
The American Academy of Physical Medicine and Rehabilitation is the national medical society representing more than 8,000 physicians who are specialists in the field of physical medicine and rehabilitation (PM&R). PM&R physicians are nerve, muscle, bone and brain experts who treat injury or illness nonsurgically to decrease pain and restore function.
Phone: 847-737-6000
Publication: PM&R
The American Academy of Physical Medicine and Rehabilitation is the national medical society representing more than 8,000 physicians who are specialists in the field of physical medicine and rehabilitation (PM&R). PM&R physicians are nerve, muscle, bone and brain experts who treat injury or illness nonsurgically to decrease pain and restore function.
Phone: 847-737-6000
Publication: PM&R
American Occupational Therapy Association (AOTA)
Nationally recognized professional association of occupational therapists, therapy assistants, and students.
Phone: 301-652-2682
Publications:
Nationally recognized professional association of occupational therapists, therapy assistants, and students. Phone: 301-652-2682
Publications:
- American Journal of Occupational Therapy
- OT Practice
- E-Newsletter
- SIS Quarterly
American Physical Therapy Association (APTA)
National professional association fostering advancements in physical therapy practice, research, and education.
Phone: 800-999-2782
Publications:
National professional association fostering advancements in physical therapy practice, research, and education. Phone: 800-999-2782
Publications:
- Physical Therapy
- PT IN Motion
- Perspectives Magazine
- Guide to Physical Therapist Practice
- Podcasts
American Spinal Injury Association (ASIA)
ASIA aims to (1) to promote and establish standards of excellence for all aspects of health care of individuals with spinal cord injury from onset throughout life, (2) educate members, other healthcare professionals, patients and their families as well as the public on all aspects of spinal cord injury and its consequences in order to prevent injury, improve care, increase availability of services and maximize the injured individual's potential for full participation in all areas of community life, (3) foster research which aims at preventing spinal cord injury, improving care, reducing consequent disability, and finding a cure for both acute and chronic SCI, (4) to facilitate communication between members and other physicians, allied health care professionals, researchers and consumers.
Phone: 404-355-977
Publications:
ASIA aims to (1) to promote and establish standards of excellence for all aspects of health care of individuals with spinal cord injury from onset throughout life, (2) educate members, other healthcare professionals, patients and their families as well as the public on all aspects of spinal cord injury and its consequences in order to prevent injury, improve care, increase availability of services and maximize the injured individual's potential for full participation in all areas of community life, (3) foster research which aims at preventing spinal cord injury, improving care, reducing consequent disability, and finding a cure for both acute and chronic SCI, (4) to facilitate communication between members and other physicians, allied health care professionals, researchers and consumers.
Phone: 404-355-977
Publications:
- International Standards for Neurological Classification of SCI Reprinted 2008, (also available in Spanish)
- Guidelines for Use of Durable Medical Equipment For Persons with Spinal Cord Injury & Dysfunction
Association of Academic Physiatrist (AAP)
AAP promotes the advancement of teaching and research in Physical Medicine and Rehabilitation within an academic environment.
Phone: 410-712-7120
Publications:
AAP promotes the advancement of teaching and research in Physical Medicine and Rehabilitation within an academic environment. Phone: 410-712-7120
Publications:
- The American Journal of Physical Medicine & Rehabilitation
- AAP Newsletterursing
- AAP E-Brief
- Rehab in Review
Association of Rehabilitation Nurses (ARN)
ARN's mission is to promote and advance professional rehabilitation nursing practice through education, advocacy, collaboration, and research to enhance the quality of life for those affected by disability and chronic illness.
Phone: 800-229-7530
Publications:
ARN's mission is to promote and advance professional rehabilitation nursing practice through education, advocacy, collaboration, and research to enhance the quality of life for those affected by disability and chronic illness. Phone: 800-229-7530
Publications:
- ARN Network
- Rehabilitation Nursing
Center for International Rehabilitation Research Information and Exchange
CIRRIE facilitates the sharing of disability-related information between rehabilitation researchers in the US and those in other countries.
Phone: 716-829-6743
CIRRIE facilitates the sharing of disability-related information between rehabilitation researchers in the US and those in other countries. Phone: 716-829-6743
Christopher and Dana Reeve Foundation
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
Phone: 800-225-0292
Newsletter: Research News
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.Phone: 800-225-0292
Newsletter: Research News
The Craig H. Neilsen Foundation
The Foundation is dedicated to supporting research and innovative rehabilitation programs to improve the quality of life for those with SCI.
Phone: 702-567-7072
The Foundation is dedicated to supporting research and innovative rehabilitation programs to improve the quality of life for those with SCI.
Phone: 702-567-7072
Disability and Business Technical Assistance Centers (DBTACs)
Offers a regional listing of DBTACs throughout the US that provides information, materials, technical assistance and training on the ADA and accessible technology including building accessible web pages, assuring that distance learning programs are accessible and assuring that technology purchases are those which are best able to work with assistive devices. The ADA Collection consists of more than 7,400 documents.
Phone: 800-949-4232
Offers a regional listing of DBTACs throughout the US that provides information, materials, technical assistance and training on the ADA and accessible technology including building accessible web pages, assuring that distance learning programs are accessible and assuring that technology purchases are those which are best able to work with assistive devices. The ADA Collection consists of more than 7,400 documents. Phone: 800-949-4232
International Association of Rehabilitation Professionals
The International Association of Rehabilitation Professionals provides a community for rehabilitation professionals in their quest for education and professional growth, thereby promoting effective, interdisciplinary services for persons with disabilities.
Phone: 888-427-7722
Publications:
The International Association of Rehabilitation Professionals provides a community for rehabilitation professionals in their quest for education and professional growth, thereby promoting effective, interdisciplinary services for persons with disabilities.
Phone: 888-427-7722
Publications:
- The Rehabilitation Professional (RehabPro)
- Journal of Life Care Planning (JLCP)
Job Accommodation Network (JAN) (En Español)
JAN is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace.
Phone: 800-526-7234
Newsletter: JAN E-News
JAN is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace. Phone: 800-526-7234
Newsletter: JAN E-News
National Association for Home Care (NAHC)
The National Association for Home Care & Hospice is the nation's largest trade association representing the interests and concerns of home care agencies, hospices, and home care aide organizations.
Phone: 202-547-7424
Magazine: Caring
The National Association for Home Care & Hospice is the nation's largest trade association representing the interests and concerns of home care agencies, hospices, and home care aide organizations. Phone: 202-547-7424
Magazine: Caring
National Center for the Dissemination of Disability Research (NCDDR)
NCDDR's scope of work focuses on knowledge translation (KT) of NIDRR-sponsored research and development results into evidence-based instruments and systematic reviews. NCDDR is developing systems for applying rigorous standards of evidence in describing, assessing, and disseminating research and development outcomes.
Phone: 800-266-1832
Publications:
NCDDR's scope of work focuses on knowledge translation (KT) of NIDRR-sponsored research and development results into evidence-based instruments and systematic reviews. NCDDR is developing systems for applying rigorous standards of evidence in describing, assessing, and disseminating research and development outcomes.
Phone: 800-266-1832
Publications:
- FOCUS: Technical Briefs
- Knowledge Translation: Introduction to Models, Strategies, and Measures
- NCDDR's Task Force Papers
National Clearinghouse of Rehabilitation Training Materials (NCRTM)
We serve the profession of Vocational Rehabilitation as a centralized resource for the development, collection, dissemination, and utilization of training materials; as a forum for advancing knowledge through applied research and open dialog; and as a marketplace for career and staff development.
Phone: 866-821-5355
Journal: Vocational Evaluation and Work Adjustment Association
We serve the profession of Vocational Rehabilitation as a centralized resource for the development, collection, dissemination, and utilization of training materials; as a forum for advancing knowledge through applied research and open dialog; and as a marketplace for career and staff development. Phone: 866-821-5355
Journal: Vocational Evaluation and Work Adjustment Association
National Institute on Disability and Rehabilitation Research (NIDRR)
NIDRR provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. All of our programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood.
Phone: 202-245-7640
NIDRR provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. All of our programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood.
Phone: 202-245-7640
National Rehabilitation Association (NRA)
NRA seeks to be the premier organization nationwide connecting thousands of professionals in the area of vocational rehab. We are here to serve our members and provide them with up to date information on advocacy, issues and networking opportunities.
Phone: 703-836-0850
Publication: Journal of Rehabilitation
Newsletter: Contemporary Rehab
NRA seeks to be the premier organization nationwide connecting thousands of professionals in the area of vocational rehab. We are here to serve our members and provide them with up to date information on advocacy, issues and networking opportunities. Phone: 703-836-0850
Publication: Journal of Rehabilitation
Newsletter: Contemporary Rehab
National Rehabilitation Counseling Association (NRCA)
NRCA is the largest national organization representing rehabilitation counselors practicing in a variety of work settings: private non-profit agencies, hospital medical settings, educational programs, private-for-profit businesses, state/federal agencies, private practice, unions, and others.
Phone: 703-361-2077
Publication: Journal of Applied Rehabilitation Counseling
NRCA is the largest national organization representing rehabilitation counselors practicing in a variety of work settings: private non-profit agencies, hospital medical settings, educational programs, private-for-profit businesses, state/federal agencies, private practice, unions, and others.
Phone: 703-361-2077
Publication: Journal of Applied Rehabilitation Counseling
National Rehabilitation Information Center (NARIC) (En Español)
NARIC provides direct, personal, and high-quality interactive information services to anyone throughout the country in the disability and rehabilitation community.
Phone: 800-346-2742
Brochures:
NARIC provides direct, personal, and high-quality interactive information services to anyone throughout the country in the disability and rehabilitation community. Phone: 800-346-2742
Brochures:
- Advocacy
- Assistive Technology
- Spinal Cord Injury
- Employment
- Universal Design
- Finding Rehabilitation Services
Newsletters:
- RehabWire
- reSearch
Paralyzed Veterans of America (PVA)
The PVA empowers the spinal cord injured veterans with what they need to achieve the things they fought for: freedom and independence.
Phone: 800-424-8200
PVA Clinical Practice Guidelines:
The PVA empowers the spinal cord injured veterans with what they need to achieve the things they fought for: freedom and independence. Phone: 800-424-8200
PVA Clinical Practice Guidelines:
- Acute Management of Autonomic Dysreflexia
- Bladder Management for Adults with SCI
- Depression Following SCI
- Neurogenic Bowel Management in Adults
- Outcomes Following Traumatic SCI
- Respiratory Management Following Spinal Cord Injury
- Prevention of Thromboembolism
- Pressure Ulcer Prevention and Treatment
- Respiratory Management Following SCI
- Early Acute Management in Adults with Spinal Cord Injury
- Sexuality and Reproductive Health in Adults with Spinal Cord Injury
- Preservation of Upper Limb Function Following Spinal Cord Injury
Model Systems Knowledge Translation Center (MSKTC)
MSKTC is a national center that works to put research into practice to serve the needs of people with spinal cord injuries.
Phone: 206-685-4181
MSKTC is a national center that works to put research into practice to serve the needs of people with spinal cord injuries.
Phone: 206-685-4181
National Spinal Cord Injury Statistical Center (NSCISC)
NSCISC supervises and directs the collection, management, and analysis of the world's largest SCI database from the Model SCI Systems. In addition to maintaining the national SCI database, the NSCISC personnel conduct ongoing, database-oriented research that has had a significant impact on the delivery and nature of medical rehabilitation services for SCI patients.
Phone: 205-934-3320
Publicatioins:
NSCISC supervises and directs the collection, management, and analysis of the world's largest SCI database from the Model SCI Systems. In addition to maintaining the national SCI database, the NSCISC personnel conduct ongoing, database-oriented research that has had a significant impact on the delivery and nature of medical rehabilitation services for SCI patients.
Phone: 205-934-3320
Publicatioins:
- Facts and Figures at a Glance (English and Spanish)
- Annual Statistical Reports
Rehabilitation Research and Training Center on Secondary Conditions in Individuals with SCI
Over 5 years (2009-2014), our Center will carry out 3 research studies and 3 training projects to study the following conditions:
Over 5 years (2009-2014), our Center will carry out 3 research studies and 3 training projects to study the following conditions:- Obesity;
- Cardiometabolic Syndrome (which is a condition that can lead to obesity, diabetes, high blood pressure, and other conditions); and
- Pressure Ulcers, or skin breakdowns
Phone: 877-278-0644
Training Materials:
- Cardiometabolic Education Package
- Bone Health and Osteoporosis Education Package
- Robotics Package
- State of Science Video package
- Exercise and self efficacy package
Model Spinal Cord Injury Systems of Care
NIDRR funds 14 Model SCI Centers across the United States that work together to demonstrate improved care, maintain a national database, participate in independent and collaborative research, and provide continuing education relating to spinal cord injury.
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