Resource CenterSupport GroupsSCI Information SheetsConsumer Info Sheet

2.1. Consumer Info Sheet

AGRABILITY PROJECT
800-825-4264 or 765-494-5088
email: bng@ecn.purdue.edu
www.agrability.org
Purdue University, 1146 ABE Building West Lafayette, IN 47907-1146
An international source for information and resources on rehab technology for persons with disabilities working in agriculture.

AMERICAN ASSOC OF PEOPLE WITH DISABILITIES
800-840-8844 or 202-457-0046
email: aapd@aol.com
www.aapd.com
1629 K Street NW, Suite 503, Washington, DC 20006
Provides economic clout and power in numbers, unity, leadership and impact in the disability rights movement.

CENTER FOR ASSISTIVE TECHNOLOGY AND ENVIRONMENTAL ACCESS
404-894-4960
email: catea@coa.gatech.edu
www.sedbtac.org
490 10th Street, Atlanta, GA 30318
Provides ADA information, technical assistance and training to businesses and people with disabilities. They also provide referrals to the other ten regional centers around the country.

CENTER FOR RESEARCH ON WOMEN WITH DISABILITIES
800-443-7693 or 713-798-5782
email: crowd@bcm.tmc.edu
www.bcm.edu/crowd
Baylor College of Medicine, Dept of PM&R One Baylor Plaza, Houston, TX 77030
Focuses on issues related to health, aging, civil rights, abuse and independent living of women with disabilities. Develop and disseminate information to expand the life choices of women with disabilities.

CENTER FOR UNIVERSAL DESIGN
800-647-6777 or 919-515-3082
email: cud@ncsu.edu
www.design.ncsu.edu/cud
College of Design, North Carolina State University Campus Box 8613, Raleigh, NC 27695-8613
Collects, updates, publishes, and distributes resource information about construction and home modifications for accessibility. Provides information and technical assistance on universal design and accessible housing.

CHRISTOPHER & DANA REEVE PARALYSIS RESOURCE CENTER
800-539-7309
email: info@paralysis.org
www.paralysis.org
Provides a comprehensive, national source of information for people living with paralysis. You may email questions or call the toll-free number to speak with an Information Specialist.

DISABLED SPORTS USA
301-217-0960
email: information@dsusa.org
www.dsusa.org
451 Hungerford Dr, Suite 100, Rockville, MD 20850
Provides children & adults with disabilities access to sports, recreation, and physical education programs. They sponsor "learn to" programs in a variety sports; competitive programs for serious athletes; family services; training and certification of professionals; and educational videotapes and manuals.

FES INFORMATION CENTER
216-231-3257
email: info@fesc.org
http://fescenter.cwru.edu/
11000 Cedar Ave, Cleveland, OH 44106-3052
Provides a literature (brochures, information packets, and bibliographies) and referral service on FES (Functional Electrical Stimulation) technology.

JOB ACCOMMODATION NETWORK (JAN)
800-526-7234 (or 800-232-9675 for ADA Info)
email: jan@jan.wvu.edu
www.jan.wvu.edu
PO Box 6080, Morgantown, WV 26506-6080
Provides methods, devices, and strategies for solving job accommodation problems for workers with disabilities.

MIAMI PROJECT TO CURE PARALYSIS
800-782-6387 or 305-243-7147
www.miamiproject.miami.edu
PO Box 016960 (R-48), Miami, FL 33101
A comprehensive research center dedicated to finding more effective treatments and ultimately a cure for paralysis.

NAT COUNCIL ON INDEPENDENT LIVING (NCIL)
703-525-3406 or 703-525-4153 (TTY)
email: ncil@ncil.org
www.ncil.org
1916 Wilson Blvd, Suite 209, Arlington, VA 22201
Coordinates efforts of Independent Living Centers, that advocate for rights of people with disabilities.

NAT FAMILY CAREGIVERS ASSOCIATION (NFCA)
800-896-3650
email: info@thefamilycaregiver.org
www.nfcacares.org
10400 Connecticut Ave, Ste 500, Kensington, MD 20895
Works to improve the quality of life of family caregivers. Provides information, education, support, public awareness and advocacy.

NAT REHABILITATION INFORMATION CTR (NARIC)
800-346-2742 or 301-459-5900
email: naricinfo@heitechservices.com
www.naric.com
4200 Forbes Boulevard, Suite 202, Lanham, MD 20706
A library and information center on disability providing brochures, resources guides, fact sheets and collecting and distributing results of federally funded research projects.

NATIONAL SPINAL CORD INJURY ASSOC (NSCIA)
800-962-9629 or 301-214-4006
email: info@spinalcord.org
www.spinalcord.org
6701 Democracy Blvd, Ste 300-9, Bethesda, MD 20817
Works to develop programs and serve as advocates for people with SCI, families and health care providers.

PARALYZED VETERANS OF AMERICA (PVA)
800-424-8200
email: info@pva.org
www.pva.org
801 18th Street NW, Washington, DC 20006
A veterans service organization devoted to maximizing the quality of life for people with spinal cord injury or spinal disease through research, education, advocacy, and recreation programs. (see Paraplegia News)

SPINALCORD INJURY INFORMATION NETWORK
205-934-3283
email: sciweb@uab.edu
www.spinalcord.uab.edu
619 19th Street S., SRC-529, Birmingham, AL 35249
Website with SCI materials and links to resources for people with disabilities. Managed by the University of Alabama at Birmingham Model Spinal Cord Injury System.

SPINALCORD INJURY NETWORK INTERNATIONAL
800-548-2673 or 707-577-8796
email: spinal@sonic.net
www.spinalcordinjury.org
3911 Princeton Dr, Santa Rosa, CA 95405-7013
Provides an information and referral service for persons with SCI. They loan SCI related videotapes through the mail to individuals with spinal cord injury and their families.

THROUGH THE LOOKING GLASS (TLG)
800-644-2666 or 510-848-1112
email: tlg@lookingglass.org
www.lookingglass.org
2198 Sixth St, Suite 100, Berkeley, CA 94710
A research and training center that offers clinical and supportive services, training, and research to families in which one or more members has a disability or medical issue.

UNITED SPINAL ASSOCIATION
800-962-9629
www.unitedspinal.org
120-34 Queens Boulevard, Kew Gardens, NY 11415
An organization dedicated to enhancing the lives of individuals with spinal cord injury or disease.  United Spinal is the largest non-profit organization dedicated to helping people living with SCI/D and is committed to providing active-lifestyle information, peer support and advocacy that empower individuals to achieve their highest potential in all facets of life.

WHEELCHAIR SPORTS, USA
515-574-1150
email: wsusa@aol.com
www.wsusa.org
1668 320th Way, Earlham, IA 50072
Developes wheelchair sporting opportunities. Sporting events for adults and youth include Paralympics, archery, shooting, swimming, table tennis and more.
Magazines & Newsletters

Inter@ct
408-793-6433
www.tbi-sci.org/interact.html
This bi-annual newsletter of the Santa Clara Valley Medical Center's Rehabilitation Research Center on TBI/SCI reports news in both SCI and TBI from this Center. Also available via email.

New Mobility Magazine
215-675-9133
www.newmobility.com
Subscription: $27.95 (US) 1 year
PO Box 220, Horsham, PA 19044
Publisher of magazine and books on disability issues, especially spinal cord injury.

Paraplegia News
888-888-2201
Email: info@pnnews.com
www.pvamagazines.com/pnnews
Subscription: $23 (US) 1year
2111 E. Highland Ave, Ste 180, Phoenix, AZ 85016-4702
This magazine is published by the PVA covers the latest on spinal cord injury research, new products, legislation, people with disabilities, accessible travel, computers, and more.
PVA also publishes Sports 'n Spokes magazine.

Pushin' On
205-934-3283
email: sciweb@uab.edu
www.spinalcord.uab.edu/show.asp?durki=21396
Subscription: Free to individuals with SCI
UAB Model System, 619 19th St S, SRC 529, Birmingham, AL 35249-7330
Newsletter published twice a year covering health, research, and other various issues related to SCI.

The Project
800-782-6387
www.miamiproject.miami.edu/x25.xml
Subscription: free online
PO Box 016960 (R-48), Miami. FL 33101-6960
Newsletter published 3 times a year about work of the Miami Project to Cure Paralysis.

SCI Access
734-936-7059
email: model_sci@umich.edu
www.med.umich.edu/pmr/modelsci/access.htm
Subscription: Free online
Newsletter of the University of Michigan Model SCI System, providing information on living effectively with SCI to persons with SCI, family members, and interested parties. Published 2 times per year.

Spinal Cord Injury Update
206-543-3600
Email: rehab@u.washington.edu
http://depts.washington.edu/rehab/sci/update.html
Box 356490, Seattle, WA 98195
Newslettter by University of Washington, Rehabilitation Medicine that contains articles on SCI for health care providers and consumers, as well as summaries of current literature on SCI.

*NOTE*More information on newsletters and magazines can be found at http://www.spinalcord.uab.edu/show.asp?durki=21817

Online Communication Resources

Through the Internet and Communication Software you can "talk" to others via your computer. Connect to news groups, bulletin boards, discussion groups, message boards, and Chat Rooms for topics related to SCI and disabilities.

CANADIAN ABILITIES FOUNDATION
www.enablelink.org/chat.html?showchat=1

DISABOOM.COM
http://www.disaboom.com/Forums/

DISABLED INDIVIDUALS MOVEMENT FOR EQUALITY NETWORK (DIMENET)
www.dimenet.com

VIRTUAL CENTER FOR INDEPENDENT LIVING
www.virtualcil.com

NEW MOBILITY MAGAZINE MESSAGE BOARD
http://www.newmobility.com/bb/ubbthreads.php

QUAD-LINK
www.2tim.net

QUAD-LIST
http://come.to/quadlist

VENT-USERS DISCUSSION GROUP
www.makoa.org/ventuser.htm

LOCAL AGENCIES

There are local or regional services that may be able to assist you with needs that occur due to spinal cord injury. A Social Worker at your rehabilitation center usually has the names of other agencies in your area.

INDEPENDENT LIVING CENTERS (ILCs) offer a variety of programs and services for individuals with disabilities. ILC staff work to help the individuals achieve independence and become active in their community by providing independent living skills, peer support, and advocacy. ILC staff help determine needs and make referrals concerning issues such as accessible housing and personal care assistance. To locate an ILC in your area contact:
* Independent Living Research Utilization (ILRU) Program Phone: 713-520-0232
www.ilru.org
email: ilru@ilru.org
2323 S. Shepherd, Ste 1000, Houston, TX 77019
* ILRU Directory of Centers www.ilru.org/html/publications/directory/index.html
In Alabama:
* Birmingham ILC www.birminghamilc.org
* Montgomery ILC 334-281-8780
* Mobile ILC 251-460-0301
* Jasper ILC 205-387-0159

STATE VOCATIONAL REHABILITATION SERVICES help individuals with disabilities find gainful employment. They work to ensure that the individual is prepared and trained to work in the job best suited for his/her skills and abilities. Services may include: evaluation and assessment, counseling, skills or job training, purchase of assistive devices, job placement and follow-up. The name of each state's agency may vary. In Alabama it is called Alabama Department of Rehabilitation Services. Look in the Blue Pages of your telephone directory under State Government or in the White Pages under Government Agencies for an office in your area.
* State Vocational Rehabilitation Services (for phone numbers) www.spinalcord.uab.edu/show.asp?durki=30035
* Alabama State Vocational Rehabilitation Services www.rehab.state.al.us
* Birmingham Vocational Rehabilitation Services 800-441-7609

PROTECTION & ADVOCACY SYSTEMS (P&A) are federally funded programs that work to protect the rights of individuals with disabilities by acting as legal advocates. They help with discrimination problems related to disability in the areas of housing, employment, education, transportaton and public services. To locate the P&A programs in your state, contact:
* National Disability Rights Network 202-408-9514
www.napas.org
email: info@ndrn.org
900 Second St NE, Ste 211, Washington, DC 20002
In Alabama contact: * Alabama Disabilities Advocacy Program (ADAP) 800-826-1675
www.ADAP.net
email: adap@adap.ua.edu
Box 870395, Tuscaloosa, AL 35487
* American's with Disabilities Act (ADA) Information Line 800-205-9986
* Statewide Technology Access & Response (STAR) 334-281-8780 or 800-441-7607
www.rehab.state.al.us/star

 

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