Resource CenterNew Spinal Cord Injury/Disease OnsetGoing home after SCI/D RehabWebsites with valid information

4.5. Websites with valid information

There are many websites with valid information useful to persons who are newly injured and their families.  For additional information, visit:

United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals. To learn more about our Resource Center, chapters, support groups and more, please visit:  www.spinalcord.org. United Spinal is also committed to advancing public policies that lead to greater civil rights and independence for people with disabilities. To learn more about our advocacy efforts, please visit: www.unitedspinal.org.

New Mobility Magazine, the membership publication of United Spinal Association, provides a wealth of articles, active message boards, a calendar of events, links and classifieds for wheelchair users.

The Miami Project to Cure Paralysis is the world's most comprehensive spinal cord injury research center. The Miami Project's international team of more than 200 scientists, researchers and clinicians take innovative approaches to the challenge of spinal cord injury.

Model Systems Knowledge Translation Center (MSKTC)- The MSKTC summarizes research, identifies health information needs, and develops information resources to support the Spinal Cord Injury Model Systems Center programs in meeting the needs of individuals with spinal cord injury (SCI) including numerous factsheets on important health and wellness topics.  

Spinal Cord Injury Model System Information Network, maintained by the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS). This resource promotes knowledge in the areas of research, health and quality of life for people with spinal cord injuries, their families, and SCI-related professionals. 

Craig Hospital in Denver, CO is a designated Spinal Cord Injury Model System Center.  Their website provides many educational resources for people with SCI/D.  Additionally, Craig Hospital offers a Nurse Advice Line for non-emergent questions. 

The Paralyzed Veterans of America - Paralyzed Veterans of America published the Consortium for Spinal Cord Medicine evidence-based clinical practice guidelines (CPGs) for clinicians and companion consumer guides offered to help people living with SCI put expert information to use in their daily lives. 

University of Miami POINTIS- Louis Calder Memorial Library of the University of Miami/Jackson Memorial Medical Center website, that provides comprehensive information on spinal cord injury rehabilitation for health care providers, patients and patient's families. 

Disability.gov- The U.S. federal government website for information on disability programs and services nationwide.

Listing of clinical trials related to SCI on ClinicalTrials.gov, a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world

 

 

 

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