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Help Desk → Research about SCI/D

Research about SCI/D

• 1. Functional Electrical Stimulation (FES)
  • 1.1. FES Equipment-Myolyn
  • 1.2. FES Equipment-Restorative Therapies
  • 1.3. FES Promotes Recovery in Chronic SCI
  • 1.4. Transcutaneous Stimulation
• 2. Understanding SCI research
  • 2.1. SCI2020-Decade of Disruption in Research-Event Video Archived
  • 2.2. Understanding Research: Those Scary Statistics
  • 2.3. Understanding Research: Medical & Research Articles
  • 2.4. The Controversy Over Walking & Research
• 3. General research information
  • 3.1. Model Systems Knowledge Translation Center
  • 3.2. National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
  • 3.3. NIH Clinical Research Trials and You
• 4. Learn about Participation in SCI Research
  • 4.1. Experimental Treatments for Spinal Cord Injuries: What you should know if you are considering participation in a clinical trial.
  • 4.2. How do I learn if a therapy is valid and safe
  • 4.3. Stem Cell Treatments: What to Ask
  • 4.4. 60 Minutes expose on stem cell program fraud
  • 4.5. Video: Geron Stem Cell Clinical Trial Participant Shares Her Experience
• 5. Where do I find ongoing research studies?
  • 5.1. Institute for Functional Restoration
  • 5.2. SCITrials.org
  • 5.3. SCITrialsFinder.net
  • 5.4. ClinicalTrials.gov
  • 5.5. California Institute for Regenerative Medicine
  • 5.6. SCIRE: SCI Research Evidence
  • 5.7. UAB Spinal Cord Injury Model System Information Network
  • 5.8. Miami Project to Cure Paralysis
  • 5.9. Unite 2 Fight Paralysis
• 6. Will my insurance reimburse for participating in SCI research?
  • 6.1. Coverage for Experimental Technologies (1995)
  • 6.2. Appeal for Experimental Procedures
  • 6.3. Experimental Cure Tough Choices (1999)
• 7. Websites to learn about SCI research
  • 7.1. Unite 2 Fight Paralysis
  • 7.2. Miami Project to Cure Paralysis
  • 7.3. Christopher & Dana Reeve Foundation
  • 7.4. CenterWatch - Clinical Trials information
  • 7.5. Mike Utley Foundation
• 8. Articles and Videos about SCI research
  • 8.1. Spinal Cord Injury Research and the Hope for Cure: Where are we Today? (2013)
  • 8.2. Spinal Cord Injury Research Evidence (SCIRE)
  • 8.3. CareCure Forums - Article Abstracts
  • 8.4. Hope Through Research (NINDS)
  • 8.5. Research: Stem Cells
  • 8.6. Stem Cell Therapies
  • 8.7. Survive, Subsist, Succeed: Spinal Cord Injury
• 9. Advocacy Groups
  • 9.1. Cure Paralysis Now
  • 9.2. Step Now
  • 9.3. Spinal Cord Society
  • 9.4. Unite 2 Fight Paralysis
• 10. SCI Statistical sources
  • 10.1. 'One Degree of Separation' paralysis survey 2009
  • 10.2. National SCI Statistical Center (At UAB)
  • 10.3. Annual Disability Statistics Compendium
  • 10.4. Geography of Disability
• 11. Advance Directives (donating your spinal cord for scientific research)
  • 11.1. Miami Project SCI Tissue Bank

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